Duchenne (DMD) has forced me to look at the silver lining amongst the clouds of the dark night for over 12 years now. And I must say has been both the worst and the best thing that has ever happened to me. Facing the probable outcome of early passing of my son while still holding onto despite hope has taken more, strength, love and courage I have ever known existed within me. We have had articles written about our journey with DMD, have appeared numerous times on television, Luke was the Poster Child for the Alaska Chapter of Muscular Dystrophy for 2 years, he has helped raised thousands of dollars for the cure, Full time wheelchair usage by age 11, he is on his 3rd one now!, Been given trips to Disney World, has had a "9 hour" spinal fusion surgery and heal cord lengthening surgery. Luke was given a Lap top computer by Excel Physical Therapy. UPS store granted him an extra hospital bed for dads house. Has an incredible step dad, step mother, sisters, brothers and extended family and has had thousands of angels in the shape of friends, family, teachers, strangers and personal care attendant's who have all graced us with their, love support and compassion the entire way. Bless you ALL !! You know who you are. But the best part is LUKE. He is the strongest person I know. He faces life with gentle love and eagerness that blows my mind, brings many a smile to my heart, tears on my cheeks and the music of laughter to my ears. Luke you are my hero. I love you son!