Go to www.towardsabrighterfuture.org.au for news of our national neuromuscular conference in Sydney, Feb 26-27, 2010. Draft program is online now, including concurrent breakout sessions. Share this update with affected persons and family for whom we have govt monies to offer some assistance to attend if needed.
At 10:22pm on September 20, 2009, Deb Robins said…
I am hoping to meet you and your family at our Blueball launch next month, but maybe you can also make our online chat prior with a Dutch exon skipping scientist. I am webmaster since 2003 of DF (PPA) and timed it so the kids might be in bed & of course for Annemieka's convenience. Hope to see you there. Regards Deb Robins
We are hoping to get as many people involved in the walk. Each walker will get a sponsorship form and will need to collect funds on this form. I can send you this form it will have all the details of the day on it. Send you address details to firstname.lastname@example.org All money raised will be donated to Muscular Dystrophy Research. The walk is down at Manly Beach starting at Queenscliff SLSC to Shelly Beach return with a sausage sizle. It should be a great family day out. You may have family or friends that would like to come along. I can send you a form for them aswell.
Please send me the sponsorship form. Do you need people to walk for duchenne or you just need me to raise money? What information do you need to send me the form. I am all in for rasing money. Where does the money go?
My brother is also holding a large fundraiser in June to raise funds to Westmead, to a company in the states called FED who help fund research and to a 15 year old boy who has Duchene he met thru his ordeal. If we all stick together maybe we all can make a change.
I am going to advertise the walk at my work place - I just started at Pittwater Council and I thought I might ask the social club here to promote it for you and perhaps put in a Pittwater Council team.
I've also forwarded it to my old work and they are all keen to participate - only a small office, but keen to support James and MD.