Matthew Willis
  • Male
  • Fayetteville, NY
  • United States
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Profile Information

About me:
I'm a 39 year old father to three of the greatest boys to ever walk the Earth.
About my family:
My wife, Alison and 3 boys, Caleb (12), Nolan (10) and Jack (10) live in a suberb of Syracuse, NY with our Black Lab, Sebastian. Our twins were first diagnosed in November of 2006 and we have been fighting for change ever since.
Name(s) of child(ren)/individual(s) with Duchenne:
Nolan and Jack
Age(s) of child(ren)/individual(s) with Duchenne:
Fayetteville, NY

Two Smiles One Hope Foundation, Inc.

After watching and hearing of some of the atrocities that occur within the fundraising community, we decided to establish our own 501(c)(3) in order to channel local funds directly into the hands of PPMD and Charley's Fund. Our website can be reached at:

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At 3:07am on July 28, 2008, Sharyn Thompson said…
YOu have such beautiful little boys, you are a very lucky man!

Good on you for setting up your own charity. We have also gone and set up our own fundraising charity in Australia, simply so we can decide exactly where the money raised goes. We all need to make a change - welcome to a very special group!

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