Matt Petrusko
  • Male
  • Rahway, NJ
  • United States
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Name(s) of child(ren)/individual(s) with Duchenne:
Matt Petrusko
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older

Matt Petrusko's Blog

Experience at the PPMD Conference in DC

Posted on March 11, 2015 at 7:33pm 0 Comments

Going into the conference I was somewhat apprehensive. Most of the PAAC members met the night before at a restaurant across the street from the hotel. Once I saw the other members it put me at ease because I realized there were other people suffering from the same disease as me. I was interested to see how they had adapted to their own situation of DMD/BMD. The next day we began a long day of presentations. For me it was good to see other people coping with their disease just as I had been…


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At 1:30pm on August 17, 2015, Jennifer Bauer said…

Matt you are my hero.  I will miss everything about you.  You were a true fighter.  Your spirit will live in my heart forever.


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