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About me:
I am a very positive and happy From when my son was diagnosed with DMD, I reassessed my life & put my priorities before anything else! I decided to become a stay home mum & be an active part of my children's lives.
I try my hardest to be the best I can!
About my family:
I have 2 beautiful children and an amazing hubby which i love very much. We are a very close knit family, very loving, happy its only been 4 months since our little boy has been diagnosed with DMD!!
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:

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At 4:13pm on May 21, 2013, ELEONORA KAISER CONTESTIN said…

Hi my name is Eleonora and my son was diagnosed with DMD on november 2012. I know what are you feeling, and is very hard. I have one child. But you have to try to be happy and live in the present because is the only thing we know we have. The future is uncertain and we don t know exactly what is going to happen to anybody of us, so we have to be positive and believe in the cientifics that are working very hard to discover new medication to our kids !!!!

My son is 5 years old as yours.

Bye and you have to be strong !!!!!!


At 9:11pm on October 28, 2012, Jo-Anne said…

Hi Mary. Welcome to this page. I do not use this page as much as I now do the FB but it is good to keep up with PPMD especially with all the info you get.

Good to hear from you and hope you are well. Lovee Jo

At 9:36am on October 28, 2012, Deb Robins said…

Hi Mary, great to meet you at the RTW conference. Stay in touch?  Join our Aussies group?

At 7:59am on October 28, 2012, Kathy said…

Hi Mary!  Glad you found us at PPMD (and wish you didn't have to at the same time!).  ;)  I see it's been 2 months since you guys got your diagnosis. How are you all doing?  My son Keelan is now 5 yrs. and his older sister is 7.


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