Martin Daniel
  • Male
  • Knoxville, TN
  • United States
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Martin Daniel's Discussions

Hopeful, but skeptical....

Started this discussion. Last reply by Martin Daniel Jun 5, 2010. 2 Replies

I have read the journal cited by one of the posters here and I found it lacking in specifics and in details. Curtis, please show us Ryan's before and after data(as measured by an objective third…Continue

Memphis Brewfest - fundraiser for DMD

Started this discussion. Last reply by Joel Rhodes Jun 3, 2010. 1 Reply

We had a successful event on April 24th.  Alot of work, but fun and successful.  $20,000 total raised($13,500 for PPMD).  Heres the website:…Continue

 

Martin Daniel's Page

Profile Information

About me:
Our son, Matthew, was diagnosed with DMD on August 19, 2009.
About my family:
One daughter, Sophie, 6, and Matthew, 4.
Name(s) of child(ren)/individual(s) with Duchenne:
Matthew
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Knoxville, Tennessee

Martin Daniel's Blog

Thanks

Posted on November 26, 2009 at 10:36am 0 Comments

thank you Pat, for staying with us and for leading us. Happy Thanksgiving!

Martin & Melissa Daniel

Skeptical too

Posted on November 12, 2009 at 9:01pm 1 Comment

Pat, I share your views on this. We certainly hope this is for real, but the details seem sketchy.

He doesn't know where the biopsy was taken from? Who is this Dr. Riordan fellow? Where did he come from?

Matthew's Dad.

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At 9:09am on November 17, 2009, curtis renard said…
Ryan's biopsy was taken from his quad. Neither Dr. Riordan nor any of his staff conducted the biopsy. It was performed by a surgeon in our home town, who had nothing to gain. The tissue was sent to Athena lab in Boston.
At 1:58pm on November 14, 2009, curtis renard said…
I am responding to your comments regarding Ryan's treatments in Costa Rica. I am Ryan's Stepfather and would like to turn your skepticism into optimism. I am sorry that your son has DMD, but I can assure you that there is more than just hope on the horizon.

Ryan was selected for this research treatment, because of our personal relationship the Neil (Dr. Riordan). He has known Ryan's mom and dad since high school and has known Ryan since he was born. Ryan was diagnosed with DMD in 1989 and over the years, Neil has researched numerous treatments that might help him. When he contacted us in Jan of last year, we were very excited. His motivation for helping Ryan was as a friend and not to gain fame, as one blogger noted.

His clinic in Costa Rica – Institute of Cellular Medicine ICM www.cellmedicine.com – has been treating various diseases, since it opened in 2006 and a new clinic recently opened in Panama. They primarily have worked with MS patients, but have also worked with many others. He does not utilize any immune suppression techniques and only works with adult stem cells.

We knew going in that based on all the success he has had with other diseases that the worst thing that could happen would be that Ryan would remain at his current state. Fortunately, Ryan has excelled beyond our highest expectations. When we received the results from the biopsy in Jan, it was one of the most emotional days I have ever experienced. We waited to go public until Ryan's case study was published, which happened about a month ago in the Cellular Immunology medical journal.

Ryan is getting stronger and is hoping that the research gained from his study will allow others to reap the same benefits. His hope is for a 30 year old person to hear something about DMD and say “I think that is what I had when I was a boy”. Ryan's has been in a wheelchair for almost 12 years and his muscles are very weak, due to the lack of activity. The physical therapy he endures at least three times a week is a slow process, in order to reactivate the dormant muscles. The good thing is that they are getting stronger.

We are hesitant to post our comments on Pat's blog for two reasons. First, we are not quite ready to field the flurry of requests we know we will receive. The second is that we do not want to interrupt any conversations with Pat and Neil. This is why I responded to you personally. Pat is just one of hundreds of requests from around the world that Neil is responding to.

Keep the faith; hope is rapidly fading into the reality of success for those with DMD.
Curt
 
 
 

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