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Marks33's Discussions


Started Apr 27, 2018 0 Replies

Access to Translarna - a lego movie

Started this discussion. Last reply by Mike O Feb 11, 2015. 1 Reply


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Age(s) of child(ren)/individual(s) with Duchenne:
London, UK

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At 10:54am on August 28, 2008, MicahsDaddy said…
Hello Mark,

I am on the committee and the web designer for Kick for a Cure. I will talk with our founder as she knows most of all the presidents and coaches for all the teams in San Diego.

What is the name of the coach at Carmel Valley Manchester that you are talking about? Here is their website:

Looks like on September 4, Manchester United’s scouting director Derek Langley will be here.

As for the Galaxy, I don't have any contacts there.

I’ll see what I can do for you.

Take care,

At 8:28pm on August 25, 2008, Sharyn Thompson said…
Hi Mark,

I saw on Ryan Lochte that you are involved with Action Duchenne. Can you tell me what this is about? My husband has organised the Tour Duchenne (see under events tab), and last year raised $200000 for MD Australia. Since we are moving to the UK, and very much want to stay involved with fundraising, it would be great to know what others are doing and see how we can get involved.
At 10:10am on August 25, 2008, Sharyn Thompson said…
Hi Mark,

We are moving to London in the next 2 months. Who is your son's doctor? Where abouts in London are you? I am trying to get as much info as I can before we arrive. We will be living in Beckenham, Kent. Maybe we can organise a UK Families group?


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