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Cholesterol
Started Apr 27, 2018 0 Replies 0 Favorites
Lego for PPMD
Started Apr 26, 2015 0 Replies 0 Favorites
Access to Translarna - a lego movie
Started this discussion. Last reply by Mike O Feb 11, 2015. 1 Reply 4 Favorites
Marks33's Page
Profile Information
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3
- City:
- London, UK
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I am on the committee and the web designer for Kick for a Cure. I will talk with our founder as she knows most of all the presidents and coaches for all the teams in San Diego.
What is the name of the coach at Carmel Valley Manchester that you are talking about? Here is their website: http://www.manchestersoccer.net/index.php
Looks like on September 4, Manchester United’s scouting director Derek Langley will be here.
As for the Galaxy, I don't have any contacts there.
I’ll see what I can do for you.
Take care,
Christian
I saw on Ryan Lochte that you are involved with Action Duchenne. Can you tell me what this is about? My husband has organised the Tour Duchenne (see under events tab), and last year raised $200000 for MD Australia. Since we are moving to the UK, and very much want to stay involved with fundraising, it would be great to know what others are doing and see how we can get involved.
We are moving to London in the next 2 months. Who is your son's doctor? Where abouts in London are you? I am trying to get as much info as I can before we arrive. We will be living in Beckenham, Kent. Maybe we can organise a UK Families group?
Cheers,
Sharyn.