I saw on Ryan Lochte that you are involved with Action Duchenne. Can you tell me what this is about? My husband has organised the Tour Duchenne (see under events tab), and last year raised $200000 for MD Australia. Since we are moving to the UK, and very much want to stay involved with fundraising, it would be great to know what others are doing and see how we can get involved.
We are moving to London in the next 2 months. Who is your son's doctor? Where abouts in London are you? I am trying to get as much info as I can before we arrive. We will be living in Beckenham, Kent. Maybe we can organise a UK Families group?