I am the member of an Indian group who have formed "Indian Chapter of PPMD" with an objective to inform and educate the Duchenne families about latest advances & care aspects for their child. My nephew is affected with DMD.
DUCHENNE CURE IS SURELY AROUND THE CORNER, IF WE ALL THINK AND ACT TOGETHER !
Do write to us at :
IndianPPMD@gmail.com
Thanks & regards
Manish Sawhney
Name(s) of child(ren)/individual(s) with Duchenne:
Manav
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
New Delhi
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At 11:26am on November 11, 2009, RAKTIM SINGH said…
Hi,
My kid 5.5 year old has been diagnosed with DMD. He has exon 46 to 50 deletion. I am trying to form group of parents in India. I am in bangalore.
My mail is raktims@infosys.com. Phone 9945225084.Please contact..
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My kid 5.5 year old has been diagnosed with DMD. He has exon 46 to 50 deletion. I am trying to form group of parents in India. I am in bangalore.
My mail is raktims@infosys.com. Phone 9945225084.Please contact..
thanks
shahabuddin