Malanie Miner
  • Female
  • Tustin, Ca
  • United States
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  • Polly Sundeen
 

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Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Tustin, Ca

Comment Wall (3 comments)

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At 6:44pm on May 4, 2009, Polly Sundeen said…
Hi Malanie! How are you? Just wanted to check in with you and see how you have been. Are you still in Tustin? I hope all is well - I have thought of you often. Call me if you have a chance.
Polly
At 5:17am on June 28, 2008, Julie Garcia said…
Hi!

Just wanted to welcome you. I am sorry you have a child affected with dmd.

Polly is right the California families group is a good one to join. It is a place I hope we can build resources to help share with California families.

Another section that I feel is important is under Discussion Forum. It is the Advocacy section. This is so important to help our families so we can push congress for more monies to help our families with research and to help establish a standard of care. I have not yet to date found a good central point of care in California. We have our Senators on board for the MD Care re-authorization act and need more House members. So, we are pushing families to contact their House members to get their sign on and if they have signed on to thank them.

Just wanted to share.

Take care,

Julie
At 7:06pm on June 5, 2008, Polly Sundeen said…
Hey! So glad you joined! When you get a chance to add pics - also go into the groups page and join the California families group. I thought I would get out of here at a decent time - but I'll probably be in the office longer than I wanted again today. Really isn't fair because Cole got the new Indiana Jones Lego game the other day and I still have not even played it with him! So call either my cell or work if you get a chance.
Talk to you soon!
Polly
 
 
 

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