Started this discussion. Last reply by mehrzad haidari Oct 7, 2013. 1 Reply 0 Favorites
Started this discussion. Last reply by amit gupta May 13, 2013. 3 Replies 0 Favorites
Started this discussion. Last reply by Pat Furlong May 2, 2012. 1 Reply 0 Favorites
© 2021 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
Comment Wall (19 comments)
You need to be a member of PPMD Community to add comments!
Join PPMD Community
Lynn, I just got this in my email:
Dear All,
Third time’s the charm! Our kick off meeting will take place at Seattle Children's from 2-5pm on January 20, 2013.
Details are as follows:
MEETING DETAILS:
Who: DMD Families (anyone 16 years and older for those wanting to bring their sons), researchers, clinicians, friends, PT’s, OT’s
Where: Children’s Hospital Wright Auditorium
When: January 20th, 2013 -- 2:00pm – 5:00pm
Coffee, tea, soda, water and mid afternoon snacks will be served
Our sincerest apologies to those who showed up at the meeting in November and didn’t receive our cancellation. Our office was knocked offline due to Super Storm Sandy.
Please RSVP for this meeting by replying to this email with how many will be attending. We’d like to have a proper headcount. We hope to see you on the 20th
Happy New Year!
Best,
Ryan
Ryan Fischer

Director of Outreach and Advocacy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
t. 201-250-8440 f. 201-250-8435
Love, Ruth Griffith (lives in Bothell, the other person that showed up for the FACES in November).
i forgot lynn yes mom for christmaes you know i do h ave everthing i need but i might be getting some braking dawn stuff you the vimpire movie. kimmy. ps my i add you as a friend thank you
hey lynn how are you. i am doing very well . i just lost over 30 pounds and walking without the walker maybe70 steps that a big deal to me. i have loose muscle which cause my joints to pop i have 14 sugeris and deal with anixty pstd. but that does not get in the way with me living. thats my goal is live for today. so my band new goal is walk with my friends at the rock and roll half marathon. in seattle and yes i will do in my walker and then i wil have to rest bit in my wheel chair. kimmy.
hi lynn how are your son is just to cute how is he doing. my name is kiimy watters and i live in tacoma and very good friends with mindy colby her son is name jake. i just wanted to induce my slef . ps email when you can. kimmy
How is the planned move to colorado going? Please let me know if you have any questions. Dr. Apkon at Denver Children's will take great care of your son and I am sure the presciption would not be an issue. She prescribes it for many boys here in Colorado.
Ang :)
View All Comments