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Lynn Bartels Graham, WA United States: Favorite

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Lynn Bartels's Friends

Started this discussion. Last reply by mehrzad haidari Oct 7, 2013. 1 Reply 0 Favorites

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At 4:21pm on December 27, 2012, Ruth Griffith said…: Lynn, I just got this in my email:

Dear All,

Third time’s the charm! Our kick off meeting will take place at Seattle Children's from 2-5pm on January 20, 2013.

Details are as follows:

MEETING DETAILS:

Who: DMD Families (anyone 16 years and older for those wanting to bring their sons), researchers, clinicians, friends, PT’s, OT’s

Where: Children’s Hospital Wright Auditorium

When: January 20^th, 2013 -- 2:00pm – 5:00pm

Coffee, tea, soda, water and mid afternoon snacks will be served

Our sincerest apologies to those who showed up at the meeting in November and didn’t receive our cancellation. Our office was knocked offline due to Super Storm Sandy.

Please RSVP for this meeting by replying to this email with how many will be attending. We’d like to have a proper headcount. We hope to see you on the 20^th

Happy New Year!

Best,

Ryan

Ryan Fischer
Director of Outreach and Advocacy

401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
t. 201-250-8440 f. 201-250-8435

Love, Ruth Griffith (lives in Bothell, the other person that showed up for the FACES in November).

At 5:20pm on November 25, 2011, kimmy watters said…: i forgot lynn yes mom for christmaes you know i do h ave everthing i need but i might be getting some braking dawn stuff you the vimpire movie. kimmy. ps my i add you as a friend thank you

At 5:02pm on November 25, 2011, kimmy watters said…: hey lynn how are you. i am doing very well . i just lost over 30 pounds and walking without the walker maybe70 steps that a big deal to me. i have loose muscle which cause my joints to pop i have 14 sugeris and deal with anixty pstd. but that does not get in the way with me living. thats my goal is live for today. so my band new goal is walk with my friends at the rock and roll half marathon. in seattle and yes i will do in my walker and then i wil have to rest bit in my wheel chair. kimmy.

At 7:38pm on November 21, 2011, kimmy watters said…: hi lynn how are your son is just to cute how is he doing. my name is kiimy watters and i live in tacoma and very good friends with mindy colby her son is name jake. i just wanted to induce my slef . ps email when you can. kimmy

At 2:40pm on November 15, 2010, Char Burke said…: Lynn - we are from Seattle WA - and I just sent you a friend request. I wanted to let you know that we go to Cincinnati to Dr. Wong from here. We are also are in the processing of setting up a relationship with local Children's. I asked both docs here and there if they would work together and they agreed to. Too soon to say how it's working but hopefully, it will. Just wanted to through that out there. We'd love to get together once you are all settled - our guy is 8 years old and we could tell you all about the PNW. Thanks Char here is by email - charlatte2@comcast.net if you want to email me at home. At work now.

At 7:54pm on January 27, 2010, Linda said…: sorry, i dont know what happened but it didn't send all my message, anyways it would be a big help if you can send that packet..thanks so much!

At 7:54pm on January 27, 2010, Linda said…: hi there Lynn and don't worry, i dont get on here much either. im so glad you responded though and a copy of that packet would be a TREMENDOUS

At 1:11pm on November 29, 2009, Linda said…: Hello Lynn, We emailed awhile back regarding a compassionate reassignment. My husband and I are at Fort Hood and want to get the boys in with Dr. Wong. I let my husband know that you were able to get yours approved and he wanted to know if there's any way we can get a copy of the packet submitted. Of course we'll have our doc letters but we can also just change the names and stuff on the 4187 and hopefully get ours approved as well. Let me know if that's possible..thanks!

At 1:16am on July 16, 2009, Linda said…: hey there...congrats on the compassionate reassignment...do you have that packet? i would like to see how we could do that.

At 1:25am on December 17, 2008, Angela said…: Hi Lynn,

How is the planned move to colorado going? Please let me know if you have any questions. Dr. Apkon at Denver Children's will take great care of your son and I am sure the presciption would not be an issue. She prescribes it for many boys here in Colorado.

Ang :)