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Lina El Saddik
- Female
- Sydney, NSW
- Australia
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- Discussions (8)
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- Photos (3)
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Lina El Saddik's Discussions
Surgery at 10 years old?
Started this discussion. Last reply by Penny Hauer Jun 9, 2010. 15 Replies 0 Favorites
Where to start? DMD in Lebanon.
Started this discussion. Last reply by Moein Apr 7, 2011. 1 Reply 0 Favorites
Lina El Saddik's Page
Profile Information
- About me:
- Hi to all, my name is Lina. Im a full time mother of four children. Im very interested in being part of this community for my own sanity and for betterment of my son and families life.
- About my family:
- We have four wonderful children. Three girls aged 11, 6 and 18months and one amazing son who just turned 8. Our family loves to laugh, we love to go out visiting family and friends and watching movies together.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Mustafa
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- sydney NSW
Lina El Saddik's Photos
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When do you leave? Will you be in town for our joint national conference with INMR Westmead - Sydney Uni - Feb, 2010? We have a couple of blue ball events before then - one in June & one in October at the Opera House. Please let me know your email so I can put you in the loop with other DMD families around Oz?
I am good freinds with Sharon Thompson. I live on the Northern Beaches of Sydney and am organising a walk-a-thon to help raise money for MD Research. Would be great to get you and your family involved. The details are as follow:
Walk for MD
April 5, 2009 at 10:30am – Manly Beach, Sydney TAKING THE STEPS TO FIND A CURE When: Sunday 5th April, 2009 Where: Manly Beach, Sydney Start: Queenscliff Surf Life Saving Club @ 10:30am Return to Surf Life Saving Club for Sausage Sizzle Route...
Let me know if you are interested and I can send you are sponsorship form.
Michelle
Where in Sydney are you living? We are originally from Collaroy, but in SIngapore at the moment.
I know what you mean about withdrawn - it is really tough getting used to our son's diagnosis. But we're getting there slowly. Trying to make a difference by raising money for research - it keeps our minds busy so we don't get sad all the time.
If you ever need to talk, just send me a message. I have been where you are for 2 years and have dealt with homepaths and counsellors to get me to a better place. Only people in our position can truly understand how we feel. Family can only understand so much. This place is a great vehicle of support.
Sharyn.