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Leeandra Arhdeacon Female Hollister, CA United States: Favorite

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Leeandra Arhdeacon's Groups

Outliers - Intermediate …

49 members
79 Comments 4 Favorites
Mom's Cafe

124 members
134 Comments 0 Favorites

Research

68 members
3 Comments 0 Favorites
Duchenne Smiles

115 members
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Early Years (diagnois-ag…

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Leeandra Arhdeacon's Discussions

Idebenone

Started this discussion. Last reply by Rahul Deshpande Jul 28, 2014. 35 Replies 0 Favorites

My sons doc recommended he take 200mg of Idebenone, i am having a really hard time frinding it. Where do you guys order it from? Also Green tea extract 150mg?

clinical trial

Started this discussion. Last reply by Leeandra Arhdeacon Jul 8, 2011. 92 Replies 0 Favorites

Are their any open clinical trials for deletion 22-41?

DMD Clinics

Started this discussion. Last reply by Bill Cain Oct 23, 2010. 5 Replies 0 Favorites

We are trying to make a decision on switchng from LPCH to another MDA clinic or DMD clinic, we live in California...any suggestions, where do you take your son and reason for choosing? We are…Continue

How often does your son attend PT/OT

Started this discussion. Last reply by Keith Van Houten Oct 8, 2010. 3 Replies 0 Favorites

Hi there, I thought I would add this for discussion.......When was your son diagnoised? How soon did you begin him in Physical/Ocupational therapy? How often do they get therapy? and where??? I…Continue

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Leeandra Arhdeacon's Page

Profile Information

About me:: mother of two awsome children, I like to sew, scrapbook and camp.

About my family:: I have been maried for 10 years and a mother of two beautiful children Nicholas 3, Isabella 16 months, I am proud that God chose me to be there parent!

Name(s) of child(ren)/individual(s) with Duchenne:: Nicholas

Age(s) of child(ren)/individual(s) with Duchenne:: 4-6

City:: Hollister, Ca

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Comment Wall (10 comments)

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At 7:55pm on September 20, 2012, Sherri Looper said…: Thanx Leeandra! Look forward to meeting you and everyone!

At 11:58am on September 10, 2012, Sherri Looper said…: Hi Leeandra, Thank you so much! I look forward to meeting the group.

At 12:29am on November 19, 2010, Misty VanderWeele said…: HI LEEANDRA :-) Now we are friends on here too! ;-)

At 12:40am on October 11, 2010, Rebecca Saulsbury said…: Hi Leeandra, I live in the Bay Area with my 10 year old son with Duchenne. I'm hardly ever on this site anymore but feel free to look me up on Facebook. Nice to meet you.

At 12:59pm on October 8, 2010, StaffStephanie Matthes said…: Hi Leeandra! You can find information about the 2011 Connect conference in PPMD's October Newsletter! It's going to take place in Baltimore, July 6-10, 2011.

At 11:33pm on October 4, 2010, Lesley Wilson said…: Hi Leeandrea,
Yes, Jordan does go to PT... but so far not very often. The service is provided through California Children's Services. I think they also offer OT as well. Here is the application link: http://www.dhcs.ca.gov/formsandpubs/forms/Forms/ChildMedSvcForms/dhcs4480.pdf

Where did you find the pool therapy for your son? Right now Jordan takes swimming lessons, but I would love for him to get therapy in the pool.

I'm hoping you and your family are well!

~Lesley

At 10:18pm on October 4, 2010, Susan Rathfelder said…: Leeandra, I am so happy you were able to find some pool therapy for your son.
Susan

At 12:57pm on August 24, 2010, Susan Rathfelder said…: Jon did pool therapy when he was younger, it was great for him. Even though he isn't doing that anymore I think that is why is pulmonary function is still good. Jon had his pool therapy through a private/non-profit orthopedic clinic here in Long Beach. They had quite a few young patients with various diagnoses. For awhile there were two other DMD boys in with him, one older and one younger than Jon. They only had 2 or 3 patients in a the pool at a time and had both a PT and a PT assistant in the pool with the kids. The Dr. who sees him at our local Children's Hospital referred him.

At 8:17pm on August 23, 2010, Lesley Wilson said…: I know exactly what you mean. It's been a year and half for our family and I'm still trying to figure out my feelings - it's hard to process. But, please know I am always her to lend an ear or chat. Take care! ~Lesley

At 4:56pm on August 23, 2010, Susan Rathfelder said…: Hi Leeandra,

My name is Susan, my son Jonathan is 19 and we are in Southern California.
Sorry to have to meet you under these circumstances. Just wanted to send you a quick note to tell you to make sure you apply for California Children's Services. Here's a link: http://www.dhcs.ca.gov/services/ccs/Pages/apply.aspx. You may be able to get financial help if you meet the criteria, you can also get physical therapy and occupational therapy services. They will also send a therapist to your child's school to help them meet his needs.

Susan