Started this discussion. Last reply by Rahul Deshpande Jul 28, 2014. 35 Replies 0 Favorites
My sons doc recommended he take 200mg of Idebenone, i am having a really hard time frinding it. Where do you guys order it from? Also Green tea extract 150mg?
Started this discussion. Last reply by Leeandra Arhdeacon Jul 8, 2011. 92 Replies 0 Favorites
Are their any open clinical trials for deletion 22-41?
Started this discussion. Last reply by Bill Cain Oct 23, 2010. 5 Replies 0 Favorites
We are trying to make a decision on switchng from LPCH to another MDA clinic or DMD clinic, we live in California...any suggestions, where do you take your son and reason for choosing? We are…Continue
Started this discussion. Last reply by Keith Van Houten Oct 8, 2010. 3 Replies 0 Favorites
Hi there, I thought I would add this for discussion.......When was your son diagnoised? How soon did you begin him in Physical/Ocupational therapy? How often do they get therapy? and where??? I…Continue
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Thanx Leeandra! Look forward to meeting you and everyone!
Hi Leeandra, Thank you so much! I look forward to meeting the group.
StaffStephanie Matthes said…
Yes, Jordan does go to PT... but so far not very often. The service is provided through California Children's Services. I think they also offer OT as well. Here is the application link: http://www.dhcs.ca.gov/formsandpubs/forms/Forms/ChildMedSvcForms/dhcs4480.pdf
Where did you find the pool therapy for your son? Right now Jordan takes swimming lessons, but I would love for him to get therapy in the pool.
I'm hoping you and your family are well!
~Lesley
Susan
My name is Susan, my son Jonathan is 19 and we are in Southern California.
Sorry to have to meet you under these circumstances. Just wanted to send you a quick note to tell you to make sure you apply for California Children's Services. Here's a link: http://www.dhcs.ca.gov/services/ccs/Pages/apply.aspx. You may be able to get financial help if you meet the criteria, you can also get physical therapy and occupational therapy services. They will also send a therapist to your child's school to help them meet his needs.
Susan