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Started this discussion. Last reply by Kristin Roof-Persons May 7, 2013. 2 Replies 0 Favorites
i dont even know whitch category to put this discussion in... my son was diagnosed with duchenne in march. we had been seeing a neurologist because he also had microcephaly. we were sent to…Continue
Tags: head, small, microcephaly
Started this discussion. Last reply by Evelyn Mar 14, 2013. 5 Replies 0 Favorites
I guess I just kinda wanted to introduce myself, my son Finley was just diagnosed with Duchennes. We were absolutely shocked, and while we're just trying to wrap our heads around everything, I've…Continue
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Just saw your greeting on NOVA. Your sons are precious :). My email is email@example.com. phone # 312-725-4292 (we still have IL area code). Feel free to call me if you want to talk to a real live person :). I'm fortunate to be a stay at home mom right now too.