I'm the mother of 3 wonderful children. Kellie age 23, Kory age 18, and Adam age 4. Kory lost his battle with Duchennes in 2007 year at the age of 16. I've been married for 8 years to my wonderful husband Howie. He has been a true blessing to me through out the last 8 years. He took care of Kory during 7 years of our marriage just as if Kory were his child. He misses his little buddy!!
Words could never express how much we all miss Kory. He will live forever in our hearts!! I'm praying for a cure. I hope that God will work a miracle for these special Angels we've been given the benefit of calling our SONS.
About my family:
Kory is missed so much by all of us. There isn't a day that goes by that we don't think of him several times. I can't wait to be with him when my time here is done!! Adam misses Kory so much!! When Kory was little his Granny made him a feather pillow. We put a bunny pillow case on it and Kory slept with it every night until he was about 10. Kory had me tuck it away in a closet. Adam found it the other night and I told him about Kory's bunny pillow. Now Adam sleeps on it every night. The pillow case shows lots of wear but Kory & Adam both love it!!
Name(s) of child(ren)/individual(s) with Duchenne:
I am writing to ask if it would be ok with you if I included a photo of Kory in a slide show I am making for a fundraiser. We are raising money for my son and for ppmd. I want all participants to see the boys in this country and world they are supporting.I would love to include Kory's picture to honor your beautiful son. Let me know if it is ok, if not I truly understand.
Oh yes please feel free to share it with me because my Dylan was our SUPERMAN I had never metanyone so strong and at his very young age. I bet you could say the same about your Kory. Our boys go through so much at such a young age. We were often told at the hospital that it was amazing of how strong he was and how much he knew we loved him, and that was the reason why he was able to bounce whenever he had set back. He was even stonger than my husband.
Hi Kimberly am also sorry to hear about your wonderful boy Kory, I totally understand what your family is going through because we have just begun our journey without my Dylan and although friends try to understand they really don't. They often say that I shouldn't cry and that I have to go on for my son David, which I totally understand that David does need me and won't fully understand for years to come but it's hard. I knew Dylan was going to go the doctors had told us "we" not him were lucky if he made it to his first birthday since he might begin to feel pain. I thought I had made peace with that but the truth is although you try to be ready I guess one is never ready to lose their child. Thank you so much for joining the group. I tried to find a greif and loss group and I saw that their wasn't one.
Thank you for your great advice. You know humor helps in our family too! It sounds like something my son would say too. I am feeling so much better with all the kind words and advice it beats crying anyday! thanks again.
Thank you so much for the kind words. I feel like my bad morning from last week will never end. But I do realize that I love my little guy so much. I don't know any of my friends who hug and kiss their child so much. I guess I just realize that it could all be taken away from me so much sooner than they do. I will keep you in my thoughts and prayers.
Thank you all for your support over the last few days. It's been a rough few days. Knowing that some day I'll get the chance to see his sweet face again helps.
I had a friend tell me yesterday that she was surprised at how well I've done. She said she didn't think she could of done it and that I was a very strong. I had to explain to her that I wasn't as strong as I seemed. I told her that my grief was really shown the day Kory was diagnosed. After I got through that; I turned my life around to live everyday to the fullest where Kory was concerned. We laughed, we smiled, we cried, we ate junk food (Kory loved his Kit Kat's), we went to movies, we went to Florida, we went camping, and we enjoyed what time we had together. I have no regrets when it comes to the care and love that I gave Kory. I certainly have no regrets as to what Kory taught me. He was wise beyond his years. He was intellegent, sweet, handsome, caring and loving. He never once lost hope. He held his head high. He never got angry about the things he couldn't do. I told her that I feel sorry for those of my friends that lost a child suddenly to a tragic accidents. I had 10 years of knowing that one day Kory would be taken from me. While I never really prepared myself for that day. I think I've grieved for 10 years in my private moments. My grieving still isn't over by any means nor will it ever be. I'm just more willing to show my feelings now. I kept it a secret from Kory. I let him dream of all of the tomorrows because that's the way it should be. He would tell me that he was going to build a huge mansion. He would live in the center and I would live in one of the wings. Kellie would live in the other. That way we'd all always be next door to each other. He told me that he would have a bigger TV than mine. That was always a joke between Kory & I because our den had the biggest TV and he wanted it in his room. I'm sure he has no need for that huge TV in heaven. He's much too busy to stop to watch TV. He's jumping, running, riding and having a wonderful time.
I couldn't watch the telethon very much yesterday. I watched the local part where they showed the pictures of all of those who have lost their battle. It was really sad to see another one of the boys that Kory knew had lost his battle this year. He was 23.
I've added a video of Kory to my page. I messed it up a little but hopefully I'll get it past you guys and you want even notice. It's amazing how much Kory changed through out the years. The guy towards the end of the video is Aaron. Aaron was Kory's MDA camp counselor for 2 years. Kory adored him. There's one picture that has all 3 of my babies (Kellie, Kory & Adam). I think there's another one that has Howie in the background. Howie is Kory's step dad but he loves Kory as much as we all do. He took great care of Kory for 8 years.
My heart goes out to you and your lovely family, may you know and find the Peace of God and that He will comfort you during this time, it is a long journey you have been through and He has brought us all together to be able to share and find comfort in one another. Blessing and peace be with you. May your hearts be filled with joy knowing that your son is with our Father in Heaven. Hugs to all of you, Jo-Anne