Kathleen Cacciaguerra
  • Female
  • Flanders, New Jersey
  • United States
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Kathleen Cacciaguerra's Discussions


Kathleen Cacciaguerra's Page

Profile Information

About me:
I am the mommy of an amazing little boy, who fills my life with joy.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Flanders, New Jersey

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Comment Wall (17 comments)

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At 10:01pm on December 11, 2013, Kristen Greco said…

Hi Kathleen.  I just saw your page and your son reminds me of my son Luke, 5 who was just diagnosed with DMD.  Keep strong and if you ever want to talk I am here and understand.  Your son is adorable!

At 4:21pm on June 3, 2010, Terry Porcaro said…
Hi Kathleen: I happened upon your page while looking through NJ members. Your son, Christian reminds me so much of my grandson Cole, who is 5 1/2 year old, especially the picture of your son playing the guitar. My grandson makes that same face and has the same stance. Your pictures are adorable. (Also, your dog is the same kind of dog we have.) Such similarities that I had to remark on them. Terry Porcaro (Grandmother to Cole, 5 and Jack 4, both with DMD)
At 10:35am on July 31, 2009, Kim Simpson said…
Hi, I got a email from the Parent Project Website saying that you left a message on my page. When I pulled up my page it was'nt on there. I don't know what happened. Could you re-send it?
At 9:23pm on July 26, 2009, Kim Simpson said…
Hi Kathleen,
How was your visit to Dr. Wong? We met your family on Wednesday and saw you alittle bit on Thursday. Austin's visit went well. He is showing a little bit of weakness in his legs and his hips are getting tighter. The physical therapist said I needed to do more hip stretching. Other than that he is doing well for his age.
At 7:40pm on October 26, 2008, donna saccomanno said…
Hi Kathleen - Pictures of Christain are great, and I remember age 6 like it was yesterday. Just started on this site myself, and I love the pics of al the kids.
At 10:48pm on June 20, 2008, Liisa Underwood said…
Hi Katheen, So sorry it's taken awhile to get back to you. Christian is such an adorable boy. I love the pictures. He seems to be doing pretty well. Feel free to contact me too, liisau@gmail.com.
At 2:01pm on June 13, 2008, cindy q said…
Hi Kathleen,
Thanks so much for your note. I just looked at your photos on your page and they are beautiful! My son with DMD is also 6. We don't get to MO very often but will surely call you when we do! Thanks for connecting with me. Don't you just love PPMD?!
Take care,
cindy q
At 1:32pm on June 12, 2008, Dave Schultz said…
Hi Kathleen
It is a small world, I was talking with Nick Petronzi today and he mentioned your husbands name. I told him that you were the first person associated with PPMD that I spoke to. I am glad you are coming and look forward to meeting all of you.
See you soon
At 12:15pm on June 11, 2008, Terry Porcaro said…
Hi Kathleen: Thank you for connecting with me. I don't know if my daugther met you at the conferences last year or not, but I will most definitely tell her to contact you. I'm sure she would love to get together with other families in N.J. Your son is adorable. I noticed in one picture he was riding a horse. Does he go for hippotherapy, and if so, where do you take him? Terry Porcaro (Cole and Jack's Grandma)
At 10:31am on June 11, 2008, Lilian said…
Anything that I can do to help and support you and your family, let me know. Keep the faith and be strong. I see your little one is an Argentina soccer fan. So are we, my husband's from Argentina. Take care of you.

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