We are a family based in Amsterdam.
$ members of our family are diagnosed with LHON.
Our 4 year old daughter has a very bad sight (10 %).
We are considering giving her Idebenone and would like to get feedback from other parents giving there young children this medicine.
About my family:
2 boys (8 and 10) and 1 girl (4 yrs)
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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