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Started this discussion. Last reply by carrie Feb 22, 2010. 12 Replies 0 Favorites
Parents,How do you handle when your son tells you he has chest pain? I remained calm but Jared would not talk about it. It lasted for an hour and that was it. I did not take him to the Dr. since I…Continue
Started this discussion. Last reply by Laurie Barton Feb 6, 2009. 18 Replies 0 Favorites
I am sure this has been discussed before and I am sorry that I could not look over discussions enough to find an answer. After we returned from seeing Dr. Wong in November, I let the teacher know we…Continue
Started this discussion. Last reply by Joshua's mom Jan 7, 2009. 36 Replies 0 Favorites
I am still so thankful that Jared is still so ambulatory. We are truly blessed by this fact and so I really cannot complain. I have been so torn about what we were recently told in Cincinnati and…Continue
Started this discussion. Last reply by cindy curr Jul 28, 2009. 21 Replies 0 Favorites
We are constantly having a battle with getting to church or school on time since Jared constantly hates his shoes and jeans. He likes them in the beginning and then hates them within a few days. Some…Continue
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I have started a new group for families with children that experience tactile sensitivities / sensory integration dysfunction.
As you were instrumental on opening up this area of discussion in December, I'm really hoping you join so we can all share tips and ideas.
I think it goes without saying that life with DMD is hard enough, but life with DMD and SID can be pretty unbearable at times......
Talk to you soon,
Thank you for your email response. Coincidentally, I just had my 2nd Echocardiogram with a new Cardiologist and was much more satisfied with the results. It also was a much easier exam then the one I had two years ago. I was very happy to hear him say that my heart is fine. I have always heard in the past "false positive", or "we can do a oblation for my very well controlled occasional tachycardia". He cleared me for another two years.
I need to be well so that I devote more time to getting money raised for MD.
By the way, Michael has his IEP at school just this year and it's working out very well so far.
Your Jared is precious in his photos. I pray for all these children.
Thanks....I look forward to meeting up with you.
Have you tried charter school. Free, public and small. Law requires them to uphold IEP's with PT/OT.
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