Hi Joe, thanks for the friend request. Our son Liam sees Dr. Alan Pestronk at the Neuromuscular Disease Center at Wash U. School of Medicine, which is by Children's Hospital/Barnes Jewish in the Central West End. We highly recommend him! Dr. Anne Connelly is great, too (she's part of the same center). They're both on the cutting edge of treatments and care for children with Duchenne, and work with the local office of the MDA.