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Jill Castle 52, Female Scottsdale, AZ United States: Favorite

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Mom's Cafe

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FACES of Arizona

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Premature Stop Codon

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Jill Castle's Discussions

Anthony Castle started the drug 6 days ago

Started this discussion. Last reply by cheryl cliff Aug 27, 2008. 6 Replies 0 Favorites

Anyone having issues getting assistive technology into thier IEP? I want to hear about it.

Started this discussion. Last reply by Marla & Vaughn Tabor Jun 25, 2008. 1 Reply 0 Favorites

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Profile Information

About me:: I am a mother of two boys, Oliver, 11 & Anthony, 13. I work for the Arizona Department of Education in the exceptional student services division as an educational specialist. I help negoiate between parents and school districts to get children the services they need. I teach special education law and train school staff as well in IEP and Postive Behavior Support. I am certified as a behavior specialist and have a Master degree in educational psychology. I like to run, kayak, hike and camp.

About my family:: Anthony plays Miracle little league, is interested in science and loves to travel. Oliver races BMX bikes, plays the cello and is a fantastic artist. We live in the beautiful Scottsdale AZ which feels like a resort most of the time. Other than a little DMD, life is good!

Name(s) of child(ren)/individual(s) with Duchenne:: Anthony

Age(s) of child(ren)/individual(s) with Duchenne:: 13-18

City:: Scottsdale

State:: AZ

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Sibling Info

Posted on July 5, 2010 at 1:00pm 2 Comments 0 Favorites

For those of you who caught our siblings panel and need additional information (or those who couldn't make it), I have attached a link.

http://http://www.parentprojectmd.org/site/DocServer/Sibshop__2.pdf?docID=4901

Remember, FAIR does not mean everyone gets the same, it means everyone gets WHAT THEY NEED.

Thanksgiving

Posted on November 26, 2008 at 11:28pm 0 Comments 0 Favorites

I am thankful for so many things. I am most thankful for the strength I have.....the strength I have that somehow doesn't allow DMD rob me or my family of our most important power......JOY. We are thankful for joy. It is totally up to us wether we choose to feel it or not. We get that. I often lay in my bed and list the things I'm grateful for....my family, my house, my breathe, my today....but we all know...all that is useless without JOY.

XO May this be our best year yet. Full of…

the great Bernie Brillstein

Posted on August 16, 2008 at 11:30pm 1 Comment 0 Favorites

Bernie Brillstein has passed away. He created the muppets, SNL, Ghostbusters and much much more. My husband was working for him when Anthony was diagnosed with DMD and he was so unbelievably compassionate and finanacially generous to our cause and to us personally. I want to take amoment to reflect on the passing of someone who's acitons will continue to live and take on a life of thier own.

He would be proud to know how much progress we have made since his intial support! May he… Continue

Comment Wall (37 comments)

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At 10:36am on March 8, 2012, Barbara Forde said…: Hi Jill, it's Barbara Forde. It has been so long. It looks like things are going well for you; I'm thrilled to see. I tried the e-mail I had for you and it is outdated. Can you e-mail me please at barbarajforde@gmail.com? I have a friend who needs assistance and I think you might know where to send her. Thanks!!

At 12:39pm on November 24, 2010, Anthony Generous said…: Hey Jill it's Tony.....I ran the Phoenix RocknRoll a few years ago. I feel bad that I haven't kept in touch! I hope you and your family are doing well. I am currently deployed to Afghanistan, but live near SLC, UT. Last I remember you guys were going to UT for treatments...I hope that's working out for the best. Hope to hear from you! Take care, Tony

At 9:55am on June 23, 2010, Star Bobatooon said…: Jill - I look forward to seeing you this week in Denver. Cane will be with me for the first time. Give me a call 703-593-9106

At 6:03pm on May 7, 2009, Perlita & Gordy Hains said…: Hi Jill - just wanted to say HI. Levi was fitted for his night splints last week - the reality is starting to set in. We have many blessings in our life & truly have found joy again. Can't wait to meet you in June.

At 6:02pm on April 6, 2009, Perlita & Gordy Hains said…: Hey Jill - quick update - Levi's CHOP appt is 4/17 now... long story, I'll call you soon for the details. Hope you are well. I reserved hotel & got airfare for DMD conference in Atlanta.

At 9:55pm on March 26, 2009, Perlita & Gordy Hains said…: Chop cancelled yet again... not all parts of Levi's tests are back from Emory. New appt 4/6 - xoxo perlita

At 10:09pm on March 15, 2009, Perlita & Gordy Hains said…: Just checking in w/ my "Angel". We are better these days. Trying to keep things as normal as possible... or at least until we go to CHOP on 3/27 for results. Hope you have a safe & happy week:) perlita

At 8:56pm on March 12, 2009, Erin said…: Hi Jill, thanks for giving me your # AGAIN. I just found the first # you gave me. I plan on giving you a call next week. Which I wrote to you in September. Life is so crazy. I am constantly running here and there. We have an ARD meeting scheduled March 30th. I just posted about a behavior intervention plan. I would love to get advice from you.
Your boys are adorable!

At 9:49am on March 7, 2009, Perlita & Gordy Hains said…: Hey Jill - wanted to let you that our CHOP appt was re-sch for 3/27, bummer. They said not all of Levi's tests were in yet. I keep trying to keep YOU in my head so I can get thru the day. Thx for ALL the positive reinforcements. xoxox perlita

At 9:09pm on February 28, 2009, Perlita & Gordy Hains said…: I got my self together a bit but I did get & SAVE your v/m so I can listen to you whenever I need it. I made my hubby listen too; he is anxious to talk w/ you. I added some pics to my page, check us out. xoxo
perlita