Jessica Crowley
  • Female
  • Mechanicsburg, PA
  • United States
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Jessica Crowley's Page

Profile Information

About me:
I am a 34 year old carrier of DMD. My mother found out I was a carrier when I was 3. That was after we found out my brother had DMD. He was 4. He passed away at the age of 16 in 1992. It was from complications from pneumonia. On February 14 2012, I found out I am a manifesting carrier. I have alot of fatigue, muscle cramps, muscle pain. I am very weak in my arms and legs. I have trouble walking and walk with a rollator walker when I can. I mostly have to use my power wheelchair now.
About my family:
I am a married mother of 2. I have a daughter. I have not had her tested yet to see if she is a carrier. By the grace of God, I have a beautiful son who does not have DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Jessica Crowley
City:
Mechanicsburg
State:
Pa

Comment Wall (2 comments)

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At 8:55pm on November 16, 2012, Perlita & Gordy Hains said…

HI Jessica,  I have a son w/ DMD.  I am not a carrier but would love to get togthr sometime.  I work on the west shore quite frequently - im on fcebook a bit more than ppmd site, hope to touch base

At 2:17pm on March 1, 2012,
Staff
PPMD
said…

Welcome Jessica- We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
 

Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org

 

And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to families, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.

 
 
 

Need help using this community site? Visit Ning's Help Page.

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