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About me:: Mom of two boys with DMD

About my family:: I am blessed with a phenomenal family! Husband, Sean, two beautiful boys with DMD - Charlie (10) and Ryan (8) and a daughter, Catherine (1).

Name(s) of child(ren)/individual(s) with Duchenne:: Charlie and Ryan

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: Duxbury

Jennifer Driscoll's Blog

Busy Times

Posted on December 20, 2008 at 10:06am 1 Comment 0 Favorites

We have a busy few days ahead of us. Doctors appointments for Charlie and for me, plus school and Christmas stuff. I’m sure my schedule is no different than most of yours this time of year! But I wanted to take a second to let you know, if you don’t already, about my personal “parent project” for 2009.

After being so moved by this summer’s conference, I am helping PPMD raise money to support other educational workshops on topics such as Endocrine and growth issues. For me it is a… Continue

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At 10:25am on March 12, 2009, Richard Kelly Poole said…: Hi there,I have been playing w/this computer stuff and put up photos somewhere here but did not really know where they went/ thought i was putting them on my page-anyway say hi to all -Nicole may go alone this may to cincy and i'll be staying put w/Delaney,and as of now it looks like we'll do Atlanta this June w/kids n all.How is baby Catherine? I think she's close to Delaney's age if i remember correctly.take care we miss u guys

At 1:17pm on December 27, 2008, Richard Kelly Poole said…: hi Jen and Sean ,we just opened your card ,the kids look great,how is everyone doing,we're starting to get back to near normal and hope to get back involved w/conferences/advocacy/fundraising etc...Nicole says hi and we miss you guys,Hope to run into you in 2009.merry x-mas rich

At 2:31pm on June 28, 2008, Julie Garcia said…: Jenny,

Nick is doing well. He has slowed down recently. He uses a scooter to get around and then has a w/chair. He is 16 years old. I will be taking him and my mother in-law to the conference in Philadelphia.

I am glad the boys are doing great! They look great too.

You take care,

Julie

At 6:00am on June 28, 2008, Julie Garcia said…: Jennifer,

I met you and your sister in DC a few years back.

Just wanted to say "hello" and your boys are beautiful! My son has a duplication of exon 3 and 4 and is now 16 years old.

Take care,

Julie
Sacramento, CA