Posted on December 20, 2008 at 10:06am
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We have a busy few days ahead of us. Doctors appointments for Charlie and for me, plus school and Christmas stuff. I’m sure my schedule is no different than most of yours this time of year! But I wanted to take a second to let you know, if you don’t already, about my personal “parent project” for 2009.
After being so moved by this summer’s conference, I am helping PPMD raise money to support other educational workshops on topics such as Endocrine and growth issues. For me it is a…
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Nick is doing well. He has slowed down recently. He uses a scooter to get around and then has a w/chair. He is 16 years old. I will be taking him and my mother in-law to the conference in Philadelphia.
I am glad the boys are doing great! They look great too.
You take care,
Julie
I met you and your sister in DC a few years back.
Just wanted to say "hello" and your boys are beautiful! My son has a duplication of exon 3 and 4 and is now 16 years old.
Take care,
Julie
Sacramento, CA