Jane Foley Woelfel
  • Female
  • Norwood, MA
  • United States
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  • Elizabeth O'Sullivan
  • ewh
  • Jeff Harvey
 

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Profile Information

About me:
Our 16 month old grandson was recently diagnosed with Duchenne Muscular Dystrophy
About my family:
We have four children; two girls, two boys. We have seven grandchildren: four girls, three boys.
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Norwood, MA

Comment Wall (3 comments)

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At 3:08pm on April 29, 2009, cindy q said…
Please note new location for MGH DMD Parent round table on Saturday May 2, is at the Holiday Inn in Rockland, MA
At 3:06pm on January 14, 2009, Jeff Harvey said…
Did you see what the others said, all of their sons exhibited a weird swallowing sensation between 8-18 months. also military crawl and pelvic weakness. Very interesting, I talked with the woman who heads up the Jett Foundation today and she says Dr Tseng is the best by far, she helped found the clinic 1 year ago. He was handpicked by Harvard Medical School to help cure Duchennes.
At 9:21am on January 14, 2009, Jeff Harvey said…
I think this is a great forum to join Jane. Thanks for all of your help yesterday.
 
 
 

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