JTrainGMom
  • 50
  • Catonsville, MD
  • United States
Share on Facebook
Share
  • Featured Blog
  • Discussions
  • Events
  • Groups (1)
  • Photos
  • Photo Albums

JTrainGMom's Groups

 

JTrainGMom's Page

Profile Information

About me:
My Godson was just diagnosed
Name(s) of child(ren)/individual(s) with Duchenne:
JTrain
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Arlington, VA

Comment Wall (2 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 7:53pm on March 19, 2009, Tina said…
I'm sorry to hear about your Godson. I'm always here for questions. We went to Hopkins when Mark was first diagnosed (almost 5 years ago). Then we went for a second opinion/consultation at CNMC in DC. We stuck with the DC group. Yup, so we drive 1 1/2 hours every 3 to 4 months to DC.
Dr. Crawford will that suggest that a muscle biopsy be done, I'm sure. This will determine the type of muscular dystrophy and the location of the mutation. Some kids have point mutations, other have deletion and duplications. The results of this test will provide the information his parents will need to know in order for them to understand what type of clinical trial he is a candidate for.

I love Havre de Grace. My husband is from here, me from Baltimore then moved to Forest Hill when I was 12 years-old.

Let me know what else I can do to help you, your Godson, and his parents.

Take care,

Tina
At 8:21am on March 17, 2009, Tina said…
We take our son to Children's National Medical Center in Washington, DC. Where does your Godson go?
 
 
 

Need help using this community site? Visit Ning's Help Page.

Members

Events

Terms of Service

© 2022   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service