Grandpa Ron and me, Grandma Genevieve, love our grandsons Christo and Blake Beckham. So we are joining their parents, Chris and Tricia, in their quest for a cure for DMD and want to support them and our grandsons anyway we can. So we are joining them, along with the Parent Project MD organization, to actively participate in this challenging journey with them through offering prayer, emotional, physical and spiritual support along the way.
Name(s) of child(ren)/individual(s) with Duchenne:
Christo and Blake Beckham
Age(s) of child(ren)/individual(s) with Duchenne:
Long Beach, CA
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I am sorry you are here because of your grandchildren but hope you will find this website of help. You will meet many wonderful and good people. Please consider joining the California families. There is a lot of good information here.
February is going to be the month for advocacy and pushing for research and awareness. PPMD and a group of friends and family go to DC and request members of congrerss to support DMD. We will need everyone we can get to either attend in DC and or be prepared to push, write letters and call their members. So, your support and help is needed.