Emilia
  • Female
  • Radom
  • Poland
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  • Brooke Lyons
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Profile Information

About my family:
My son Szymon have deletion 3-30 in frame
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Radom

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At 4:56pm on March 5, 2014, Brooke Lyons said…

Hello Emilia, my son has the same 3-30 inframe deletion.  We too were "accidentally" diagnosed.  How are you doing?  How is your sweet boy?

 
 
 

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