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Started this discussion. Last reply by Eileen DeLong Jun 3, 2009. 11 Replies 0 Favorites
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Posted on September 2, 2010 at 9:43am 0 Comments 0 Favorites
I wanted to share this with everyone!
Pat you are an inspiration to us all!
Not waiting to live, not living to wait... by Pat Moeschen
Posted on April 23, 2010 at 9:57am 1 Comment 0 Favorites
I wanted to share this with everyone.
British Journal of Pharmacology, 2010) Co-administration of ibuprofen and nitric oxide is an effective experimental therapy for muscular dystrophy, with immediate applicability to humans
Clara Sciorati, Roberta Buono, Emanuele Azzoni, Silvana Casati,…Continue
Posted on September 26, 2008 at 12:00pm 2 Comments 0 Favorites
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Thanks Eileen for getting back. I sent you friend request on Facebook too.
How are the kids doing? Didn't see any update from you for a long time.
There is a facebook group as well for exon 3-7 deletion. Once you accept my request, I can add you in the group.
Hello. I m Adnan Sarwar from Pakistan. Having muscular dystrophy backer type
i m interested to get information about new research and meet with other md
and their family for discussing issues related md. hope u help me and guide me
in this connection. ..........thanks.
I wonder if I'm a manifesting carrier too. I'm quite clumsy and the opposite of athletic, but my calves have always been on the small side ...
Thnaks so much for your message!
My name is Pilar, my son is 11 years old, he is deletion 13-17, i wonder if you could email-me the link about the article you mention about deletion in this areas of the genes? i really apeciated. I'm glad to join the forum i have been feeling pretty lonely ,with my son's condition. by the way, i'm from new jersey...and i have 2 other boys .12, and 4 years old..
We have family in New Hampshire (Charlestown/Claremont), so if we come visit again, we'll look you up.
Your boys look wonderful in your pictures-it's great to see older kids with DMD looking so happy and healthy! Colin is a very happy boy, and I am hoping to keep him that way! Thanks for your message!
Great to hear from you. Did you make it to the conference in Atlanta? I was so disappointed that I couldn't go. I took Jordan to see Dr. Wong in early July and his results were very good...heart and lungs are still strong (PFT better than last year!), strength tests, everything was same or better except his hamstring flexibility. He's not good about doing stretches and now that he's a teenager it's harder for me to force him to do anything that he doesn't want to do. How are you holding up?
my son is deletion 8-11, but his symptoms appear mild right now (he's only 7). However, I was wondering if you could send me the link to the article you mention about deletions in this area of the gene? Is it by Dr. Flannigan? I saw mention of one somewhere else, but haven't actually seen the article yet.
Hope all is well.
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