I'm a researcher with a group at Children's Hospital of Philadelphia (CHOP), and I'm interested in connecting with families of boys with Duchenne's. My colleague Bill Reynolds recently joined the community, and has found his interactions with parents very helpful. Since Ryan posted our short blurb about the focus groups we're conducting, I have received positive responses! So, I thought I should reach out, and learn more from community members...
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My wife, Joanna, and I will be down at CHoP on the 12th of November to meet with Lindsay Dorsey to discuss the PTC124 2b trial and to have our son Elliott screened for inclusion. If you want to stop by to meet and discuss your study - that would be fine with us.