My son was recently diagnosed with DMD too and we are struggling with the steroid issue we have so many concern about side effects? How are you making out? i would love to hear from you and other parents about this issue
Welcome Deanna! We hope being able to connect with other families on this site who are fighting Duchenne alongside you is empowering, and makes a difference in the lives of you and your family.
Please don't hesitate to contact us at PPMD if you ever need anything! Message us, send us an email (community@ParentProjectMD.org), or give us a call (toll free: 800-714-5437).
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Hi Deanna,
My son was recently diagnosed with DMD too and we are struggling with the steroid issue we have so many concern about side effects? How are you making out? i would love to hear from you and other parents about this issue
Stacey Davis
StaffPPMD said…
Welcome Deanna! We hope being able to connect with other families on this site who are fighting Duchenne alongside you is empowering, and makes a difference in the lives of you and your family.
Please don't hesitate to contact us at PPMD if you ever need anything! Message us, send us an email (community@ParentProjectMD.org), or give us a call (toll free: 800-714-5437).
Also, if you haven't already, we hope you consider registering on PPMD's main site: http://www.parentprojectmd.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=5323
By registering, we can send you an information packet tailored to parents of boys either newly diagnosed or already diagnosed. Hope you take a look!