Posted on December 24, 2015 at 3:08pm 1 Comment 0 Favorites
Posted on May 21, 2012 at 4:26am 5 Comments 0 Favorites
I have been so focused on thinking I can help save my son’s life that I am avoiding, perhaps evading, mine and his actual current lives. I’m not getting my work done. I don’t eat well. I hardly get outside or exercise anymore. I feel mentally exhausted and frustrated by the time evening rolls around and I lay awake most nights crying. Those dark, lonely hours, reveal the…
Posted on May 9, 2012 at 3:30am 1 Comment 1 Favorite
Posted on May 7, 2012 at 9:30pm 0 Comments 0 Favorites
I learned a few new things about my son today. Asked to name three people, real or fictitious, living or deceased, who he would like to have dinner with, here's who he picked: His grandpa Stalling (who died eight years ago); our old chocolate lab Sage (who died four years ago), and Katy Perry (who is still very much alive and singing).
Now I have "I kissed a…
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Silly me, I didn't see your friend request until after I replied to your post! How old is your son, David?
StaffPPMD said…
Welcome David! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org
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