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Started this discussion. Last reply by Char Burke Oct 8, 2009. 8 Replies 0 Favorites
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I am Diego's mom :)
We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Thanks for your kind attention to this,
Here is my email and phone number: email@example.com or (513) 765-9416
My husband is a sales rep for UniFirst - a uniform rental company. He just sold shirts and bar towels to the new Golden Corral there. He has been in Palm Coast trying to drum up more business.
Maybe sometime we could get our families together. It seems like you've been through a lot of the things we're going to face in the future with our little guy!
I hope all is well! Talk to you soon! :)
Welcome to PPMD!! We live is St. Augustine. How old is your child? We have a three year old named Ryan who was diagnosed with DMD in May. PLease join the Florida Families group!!!! Hope to see you there!