MY NAME IS DEEPAK ARORA AND MY 6 YEAR OLD SON NAME YUVRAJ IS DIAGNOSED DMD ON 28TH FEB 2014, SO I WOULD NEED HELP FROM ALL OF YOU TO RECOVER FROM THIS PROBLEM.
About my family:
I HAVE ONLY ONE SON WHO IS 6 YEAR OLD AND DIAGNOSED DMD. I AM SO SO WORRIED ABOUT HIM. KINDLY SUGGEST THE BEST WE CAN DO FROM HIM.
Name(s) of child(ren)/individual(s) with Duchenne:
MST YUVRAJ ARORA
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
NEW DELHI
State:
NEW DELHI
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Employment opportunity in Pan Pacific Hotel, The manager of Pan Pacific Hotel Canada, wants suitable personal in which our hotel needs men and women who can work and live in Pan Pacific hotels here in Canada . Our hotel will be responsible for the payment for his/her air ticket feeding and accommodations only, so if you are interest you can contact us directory at this below e-mail address link...with your C.V. EMAIL:employmentpanpacific@torontomail.com we look forward for your prompt reply. Thanks. From the Hotel manager. Mrs Cecilia Grandson.
Hi Deepak, Welcome to PPMD. I can imagine what you are going through. Our son was diagnosed in Dec 2013. We are still trying to get through this. Please don't hesitate to contact if you have any questions.
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Employment opportunity in Pan Pacific Hotel, The manager of Pan Pacific Hotel Canada, wants suitable personal in which our hotel needs men and women who can work and live in Pan Pacific hotels here in Canada . Our hotel will be responsible for the payment for his/her air ticket feeding and accommodations only, so if you are interest you can contact us directory at this below e-mail address link...with your C.V. EMAIL:employmentpanpacific@torontomail.com we look forward for your prompt reply. Thanks. From the Hotel manager. Mrs Cecilia Grandson.
pls talk with me on : 9839845710 .Rajiv behl..my son is 7 years old has DMD
Deflazacort.
Calcium and vitamin D
exercise/stretches at home as advised by physio therapist
aqua therapy once a week
Deflazacort cort has side effects but less than other steroids and it can be controlled by giving balance diet,contact a good nutritionist.
Love your son the best and hope high.
good luck
najia
Dear Deepak,
My cell no is 9662546626 and my email id is rahulpdeshpande26@gmail.com.
Hi Deepak, Welcome to PPMD. I can imagine what you are going through. Our son was diagnosed in Dec 2013. We are still trying to get through this. Please don't hesitate to contact if you have any questions.
https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelerated-approval-safe-effective-therapies-children-duchenne/qtRww0rN