I am the grandmother of two little boys who were recently diagnosed with Duchenne.
About my family:
My daughter and her husband have two sons who have Duchenne Muscular Dystrophy. They are my only grandchildren at this time. I also have two sons who do not have any children yet.
Name(s) of child(ren)/individual(s) with Duchenne:
Alex Lewis and Bryce Lewis
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 4-6
City:
ROCK PORT
State:
MO
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Welcome Cynthia! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org
And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.
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StaffPPMD said…
Welcome Cynthia! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org
And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.