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Christine Stalling Female Missoula, MT United States: Favorite

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Stomach aches

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About me:: My son Cory was diagnosed with Duchenne in January 2009. Cory is now 15 years old and still walking, he has a deletion of exon 45. I have been learning everything possible about DMD ever since 2009. The most important lesson I have learned is to actively seek answers and quickly bypass those medical providers who know less than I do about Duchenne. I have learned much online and the Annual Connect Conferences are a treasure trove of information and support. While Missoula, MT may be devoid of DMD-savvy doctors, Seattle Children's Hospital is now providing my son with the medical expertise we were seeking. I believe with all my heart that we will end Duchenne.

About my family:: My son Cory was diagnosed with DMD in January 2009. Cory is now a freshman in high school and he continues to walk. Cory plays on the JV tennis team for his high school and remains pretty active despite his age. We now have 2 dogs and a cat and Cory's dad is now in residence (despite our divorce). Cory turns 16 in June and wants to get his driver's license. Cory made the honor roll this year. This year we spent New Year's Day in Maui and Cory has many plans for traveling every chance he can.

Name(s) of child(ren)/individual(s) with Duchenne:: Cory

Age(s) of child(ren)/individual(s) with Duchenne:: 13-18

City:: Missoula

State:: Montana

Update March 2011:

Cory is having a spectacular year in 4th grade. He is achieving straight A's, reading with incredible comprehension, and learining how to express his feelings in a very mature way. While he is often frustrated because he is different from other kids in some ways, we have been seeking things that he can excel at such as participating in plays, writing, drawing, and other areas of creativity. I have stacks of his drawings that I have saved. He is a special little man, I am so proud of him. He has maintained his strength over the course of the year, walking and running, although he does become tired a little more quickly. Next checkup in Seattle is on March 16, I just hope he has not lost any ground yet. I fear the day when Duchenne steals more of his function but until then I have been raising him as the little boy he is. Our biggest hurdle now is keeping his braces flossed properly, wish that really was the biggest hurdle we will have.

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Bike Story 4 Cory

Posted on March 12, 2012 at 1:59pm 0 Comments 0 Favorites

http://www.facebook.com/l.php?u=http%3A%2F%2Fbikestory4cory.blogspot.com%2F&h=TAQHTMDv6

An inspiration--two young men are going to cycle cross-country for their senior project. And at the same time they will raise funds and awareness of Duchenne. They plan to meet up with the Jett riders halfway through and finish their trip en masse.

Comment Wall (30 comments)

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At 8:29pm on March 13, 2012, Ginny Sullivan said…: Thanks for posting about the boys Chris. The Stalling family has already come through for us in so many ways. Thank you!

At 7:54pm on March 21, 2011, kimmy watters said…: hi christine how is cory doing how was your trip to seattle childern hosptial. just droping to by to say hi. am thnking about you kimmy

At 2:47pm on March 6, 2011, kimmy watters said…: hey christine that great about cory grade,s what does he like read. we should have decent weather, rain and more rain it would not be fun driving in the snow. maybe when mom and i are f eeling better, and if you and cory have time we would love to come to vist. tacoma is just hope skip and jump. my goal right now is that i am getting ready for seattle half marathon. in june25 to help

to find a cure for duchenne. yes this very important to me, even thorugh i have walking issue , dextial and anixty and desspesson lost half my hearing i lip read, and myfather verbal abuse me. my goal is to fight for this kids with every breath i have.kimmy

At 6:04pm on March 4, 2011, kimmy watters said…: i have alot of respect and for you begin a single mom how is it going, my mom is a single i have walking issue to but that does not give me a excuse to give up. i think what you do every day is awosme. kimmy

At 12:00pm on July 9, 2010, Penny Hauer said…: Christine we were in conner mt for 10 years thats past Darby we had a 10000 ft house right on the highway everyone knew thr house it was so big I liked missoula the theather there was wonderful my dau was in alot of plays even had me in one I drove up there 4 nights a week for her. Our sons are very close in age Calebs 10th was july 1st he also finished 3rd grade he is reading on 6.1 grade level math not so well. He can still walk but is tired after short time went to the fair in power and said it was the best time he ever had cause he was not tired we left mt in 1997 cause the people just did not under why we were there causing the tax payer money for our kids we adopted several spent many nights at the hospital with Drs that were very good and more that didnot have a clue I so badly want to take Caleb to Cini but I know Medical would not pay for it. nice to talk to you I posted pics of Caleb but I donot see them anywhere I donot know very much about pcs time to learn I have learned alot from this site Penny

At 7:13pm on April 7, 2010, Kristin Linke said…: Thank you for your response. It is very helpful to know that I am not going through this alone, and that there are others out there that completely understand what we are going through.

At 8:57pm on August 17, 2009, Darcy Tumminello said…: Greetings,

How are you? Of course, how is Cory? Did he start the meds yet and if so, how' it going? Is he anxious for school to start? Christian starts in two weeks. He just fractured arm and will get cast off next week after 6 weeks of having. Enjoy the rest of summer! Terri, the boys and I went to an amusement park a few weeks ago, they had fun and thats all that counts. Talk to you soon

At 8:27pm on August 10, 2009, gerry lumpkin said…: This is a great site and helpful to read other's comments. Milt and I are there for you Chris and Cory in our own way.

At 10:07am on August 7, 2009, Lisa Jones said…: Our summer is going well. I am currently on lay off from work this week. I will work next week and have 2 more weeks of layoff. The good thing is be able to use the time to spend with family. He still walks well but it seems he is falling more. He just keeps plugging along with determination. I don't think we are close to his depending on a w/c full time; he uses the manual w/c he has occassionally. I guess my biggest fear is that one day he could fall and break a bone.

At 10:56pm on August 6, 2009, Lisa Jones said…: How is Cory doing? How were his visits in Cincinnati? I'm sorry we missed seeing you back in June. At times, I would see a mom and boy and wonder if it was you and Cory but wasn't sure. Our next visits will be Dec. 9-10.