Last week I participated in a pod cast called Kitchen Table Conversations with HerSelf First. I really enjoyed the conversation with Sheila Moeschen, Kathy Kinnett, and Kris Hersom. It was truly an enlightening conversation! Click here to listen to the Podcast.
As I was preparing for this conversation, I realized that a lot of time is spent focusing on my son. As…Continue
For the past month I felt like the old TV show MacGuyver more so than normal or the line from Project Runway, “Make it work!” At the end of March I finished a five year assignment in Buffalo NY. I live in Rochester, NY. For anyone that doesn’t know how far that is, from my home to my office I logged approximately 176 miles round trip; about three hours a day driving. Most people…Continue
Jon’s second semester at college has been rewarding and frustrating. While Jon is on campus, things are a little easier. Jon has a power chair that is stored on campus and he can navigate independently. Jon doesn’t have a power chair yet permanently. He can still walk and get in and out of a regular car, with a little help. However, getting power chair of his own and an…Continue
My family has made advocacy part of our End Duchenne agenda for many years. My daughter Kat, Jon, and I have always tried to attend the advocacy conference. This year Kat and I will attend; but Jon’s college studies will prevent him from attending. Biology, Analytical Chemistry, and English are taking up his free time. Jon really wants to make sure he doesn’t miss any of…Continue