Started Dec 14, 2013 0 Replies 0 Favorites
My son Lance has DMD. For the last year we have been doing an experimental therapy. Lance is the ONLY person in the country - probably the world - to be trying this therapy. We are having what I…Continue
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Thanks for replyingtomy note. Yes, we are so lucky and hope for a cure for our boys. How is your son doing? Is he on prednisone? What age was he diagnosed? What do you do for a living? I am a registered nurse and work in a pediatric intensiv e care unit at our children's hospital and have for 30 years now.
Joyce
My name is Donna Doyle and I'm the MomMom of a 9 year old grandson, Jacob, with DMD.
I live in Doylestown, PA and they life in Lansdale, PA. I will have to do a mapquest to see where you are in PA. Please join our PA Families Group on the "Groups" page.