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Christina Female West Sacramento, California United States: Favorite

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Started this discussion. Last reply by Robin Ecklesdafer Sep 2, 2011. 24 Replies 0 Favorites

Started this discussion. Last reply by Tina Nov 16, 2008. 6 Replies 0 Favorites

About me:: I'm a busy mom who just wants my children to have successful and fulfilling lives. In many ways, I am thankful for many things Duchenne has brought into my family's lives. It's made my children more compassionate to others. My eldest daughter is a wonderful advocate for those with disabilities, but also for herself. My son is a very loveable guy who loves to spend time with his family. My youngest doesn't know her brother without his wheelchair, so to her he's no different. All of my children are for the most part, happy and kind people, with a great sense of humor. Humor has gotten our family through some tough times.

I'm learning even the small things help raise awareness. Many people doing small things can make a huge difference.

About my family:: My husband, Joe and I have been married for 20 years and have three children, Samantha (20), Joseph (18) and Ashley (12). We live in West Sacramento, CA.

At 12:55am on March 30, 2011, David said…: My son's name is Joe too...he is 12 1/2 now, in 6th grade. Does your Joe attend the MDA camp? If so they probably have met, we've been going for years.

-David

At 9:53am on January 19, 2010, curtis renard said…: Hi Christina,

Thanks for note about Ryan. He is a great guy and he is doing very well. I'm not sure if you have seen the short piece that our local news station aired on him, so here is the link: http://www.kake.com/home/headlines/69538137.html

We are very hopeful that an orgainzaiton such as MDA or PPMD will sponsor a trial using the same techniques using adult stem cells that Ryan went through. Please let me know if you would like more information about Ryan's treatments and I will pass them along....Curt

At 8:32pm on December 7, 2009, Misty VanderWeele said…: Thank you and your welcome...13 years ago I didn't have the internet now that I do, I feel for the ones who came before us. Did you grab the Duchenne Parent Survival Kit yet?

At 8:29pm on December 7, 2009, Misty VanderWeele said…: He is a "boy" he just has to do it differently for however long he has with us♥ Over the years I have had times I was very active then times no so much...not only is Duchenne Progressive so is our grief as parents. If I need time I take it, when I want to reach out I do. The main thing is yes I have bad days like today, crying and wondering how I can love the you know what even more out of my son. He 18 on the 22nd every second, minute, day, month or year is a blessing, I'll take it!

At 5:14am on December 4, 2009, Julie Garcia said…: Hey there...I don't get on here much any more...Yes, Cathie is an amazing person!

At 9:56pm on December 3, 2009, Cathie Bullis said…: Hello Chrstina,
I would be happy to meet with you sometime. We will be out of town from Dec 18th -Jan 3rd, but will be around all through Jan.

Would you like to meet after the holidays?

Cathie

At 8:27pm on December 3, 2009, Misty VanderWeele said…: HI Christina...saw that you are online...How are you??

At 3:35pm on March 18, 2009, Julie Garcia said…: Hi Christina, just got word the meeting is postponed until May. Hopefully, we will hear details on the May one soon.

Take care, Julie

We can try to get together before then