At 11:08am on September 19, 2009, Lynne Taylor said…
Hi Charlotta
My name is Lynne and I am from Cardiff Wales. My son is 15 years old and has the same deletion as your son. They are also doing clinical trials in the UK on exon 51. Do you know what stage they are at in the trials in Sweden and if they will trial 45 next?
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My name is Lynne and I am from Cardiff Wales. My son is 15 years old and has the same deletion as your son. They are also doing clinical trials in the UK on exon 51. Do you know what stage they are at in the trials in Sweden and if they will trial 45 next?