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Carol Keskeny Female Florence, MT United States: Favorite

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About me:: I am the mother of Daniel and I am a school teacher.

Name(s) of child(ren)/individual(s) with Duchenne:: Daniel Marks

Age(s) of child(ren)/individual(s) with Duchenne:: 19 or older

City:: Missoula, MT

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Posted on November 28, 2008 at 9:59am 0 Comments 0 Favorites

I am desperately looking for a pair of shoes for my 22 year old son with DMD. His foot drop is really bad with his little toe curling underneath his foot. Any advice?

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At 4:31am on January 5, 2018, Margarita Yashchenko said…: My number mobile phone +380504870457. We can use Viber

At 4:08am on January 5, 2018, Margarita Yashchenko said…: "Hello, Dear Carol! I wrote to you the letter to your email again"

At 2:11am on January 4, 2018, Margarita Yashchenko said…: Hello, Carol! I wrote to you the letter to your email.

At 12:54pm on December 10, 2017, Margarita Yashchenko said…: My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 10 years old. Doctors diagnosed the illness at the age of 6.5. In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such asstretching) every day. For 2 years we have been able to stop the disease. But last 2 years my son fells woster than it was early. I would like to communicate with the American parents and doctors who probably know more about new medicines or methods for treating this condition. My email my-science@ukr.net. If you have a free time write me on my email I wiil wait.

At 10:08pm on October 4, 2009, Perlita & Gordy Hains said…: hi carol - just ran across ur page & wanted to say HI - I was brought to tears when I read that you never thought you'd see the day your son turned 22. Our Levi just turned 3 and was recently dx w/ DMD - all we want is for him to turn 22, 32, 42, 52 etc. we have great family helping us and PPMD has been amazing. Your son looks so happy. and thaty's all we want for Levi and his 2 older bros who do NOT have DMD. well just want to say HI perlita

At 4:25pm on July 6, 2009, Christine Stalling said…: Carol, thanks for the link to the article about the brain and Duchenne. Did you ever take Daniel to a neuropsych when he was younger? I am thinking about doing so for Cory after reading the article.

At 7:53pm on June 30, 2009, Christine Stalling said…: Hi Carol. Thanks for the link to the article, I look forward to reading it. I am sorry to hear of all your recent troubles. When it rains it pours! Lets talk soon.

At 8:04am on May 5, 2009, Christine Stalling said…: Carol, I would love to meet you--Wednesday would work. This sense of insanity is overwhelming, every step of the way has been frustrating. When Cory started kindergarten there were some problems at school which after trial and error turned out to be Aspergers. Good news, he was set up with an IEP and his school has been really great. He was also toe-walking at 6 so we went to his ped. who sent us to a ped. orth. surgeon. Dx was idiopathic and they casted him. That didn't do much so he suggested surgery, I said no (surgery when dx is idiopathic?). November '08, a teacher's off-the-cuff comment "he walks like one of my MD students" sent me through this latest labyrinth trying to get a dx. One dr. told me to go to a child psych. Finally found MDA through the internet and got a dx in Jan and genetics lab in March. But that is about all they can offer. Many hours of research and I have found very interesting work on the connection btwn autism spectrum and DMD. I just really need to find the best place to take Cory for real help.

At 7:57pm on May 4, 2009, Christine Stalling said…: Oh Carol, thank you so much for writing back. I look forward to talking to you!

At 6:59pm on May 4, 2009, Christine Stalling said…: Hi Carol. I just joined PPMD and was looking for parents of children with DMD in Montana. I live in Missoula and my son Cory is 8 yrs. I thought I should introduce myself here because Paula H. mentioned your name to me. Just wanted to say hello.