I'm originally from Illinois but live here in the Houston area. I work as a Medical Assistant and am studying to get into the RN program. I enjoy reading, music, and spending time with my family & friends. I'm looking forward to meeting people in my community affected by MD.
About my family:
My grandfather was the 1st diagnosed case of BMD in our family, he has 2 brothers who are unaffected, My grandfather went misdiagnosed for years even being told he had Polio. Finally, in the 80's they diagnosed him with BMD. He fought very hard for normalcy in his life. He raised me and I saw how slow but progressive it was. He fought to the age of 75 when we lost him 12/25/10. My brother was diagnosed with BMD inutero. He's now 15 and showing slight signs. He hasn't been under any medical supervision since he was 7. I am so fearful for him since my mom & stepfather don't seem to want to even talk about it which is why I'm looking for support.
Name(s) of child(ren)/individual(s) with Duchenne:
Glad you found this site! Would be happy to chat with you! My son is eight and we live in the Houston area. There is a Texas group on here you could join--if you haven't already. There are quite of few of us in the area and we have activities every so often. Not that I get to attend that often but they do have them! :) Have a great week!