I'm a researcher at Children's Hospital of Philadelphia and Stockton College (NJ), and I am working on a project that involves interviews with boys with DMD and their parents. I would like to participate in the PPMD Community to become as informed as possible about issues that are important to community members.
Hi Bill, My son has DMD, 17 years old. I want to know that your studying about the DMD project and I wish you success. Best regards.Koksal
At 11:21am on February 19, 2009, cheryl cliff said…
PS.
If you take a look at the Ad. Group here at PPMD I think you will find it is mostly parents of teenagers with DMD.
At 9:33am on February 18, 2009, cheryl cliff said…
Oh, that makes a lot of sense. A much better way to approach things. By the way - your son is adorable!
At 9:20am on February 18, 2009, cheryl cliff said…
Hi Bill,
With regard to the adolescent group you are starting, you might want to consider going to the groups section here at PPMD and joining for the adolescent one. Just a thought.
I sent Diana a message to say we are interested in participating in your study/interviews. So far I haven't heard anything back. Let me know if we can be of assistance.
I recieved your message and I appreciate your response very much. I will respond back a little later. I just wanted to send a quick note to thank you for replying.
Yes, I did see Ryan's post and then went to check on you. I am looking forward to whatever can be done to help and assist. If you are ever in northern California please let me know. I do travel to southern California on occassion.
Take care,
Julie
At 11:12am on October 24, 2008, Julie Garcia said…
Hi Bill,
I did not know you had joined! Welcome. Please let me know if you need anything.
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If you take a look at the Ad. Group here at PPMD I think you will find it is mostly parents of teenagers with DMD.
With regard to the adolescent group you are starting, you might want to consider going to the groups section here at PPMD and joining for the adolescent one. Just a thought.
cheryl
I sent Diana a message to say we are interested in participating in your study/interviews. So far I haven't heard anything back. Let me know if we can be of assistance.
cheryl
I recieved your message and I appreciate your response very much. I will respond back a little later. I just wanted to send a quick note to thank you for replying.
Take care,
Julie
Yes, I did see Ryan's post and then went to check on you. I am looking forward to whatever can be done to help and assist. If you are ever in northern California please let me know. I do travel to southern California on occassion.
Take care,
Julie
I did not know you had joined! Welcome. Please let me know if you need anything.
Julie
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