Becky
  • Female
  • Broomfield, CO
  • United States
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Started this discussion. Last reply by Kelvinsmom - Michelle Dec 16, 2008. 5 Replies

 

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About my family:
Nephew is 2 1/2 years. Just diagnosed with DMD
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Denver Colorado

Comment Wall (4 comments)

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At 6:01pm on September 21, 2009, Angela said…
It's Coach to Cure MD week and we have events around Colorado this weekend, to help us End Duchenne! Please try to find a way to help raise awareness and funds this weekend - attend an event, eat out at Uno Chicago Grill, share the website below, make a donation, send a thank you note to the college coaches in Colorado, text CURE to 90999 to make a $5 donation and share all these opportunities with everyone you know!

Check out the Colorado Regional Captain's website: www.parentprojectmd.org/goto/darrell.knight

Here's to "Getting in the Game"!!!
At 2:17pm on January 1, 2009, Amy Wickert said…
Hi Becky. Sorry to hear about your nephew. What city does your nephew live in? My son also has a deletion of exon 45.
At 5:55pm on December 19, 2008, djamel fathi said…
Welcome,it's samething for us my son is 7yrs old was recently [last august] diagnosed with DMD,deletion exon 45.
At 10:47am on December 16, 2008, Marian Lamberson said…
Welcome Becky!
 
 
 

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