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Anthony DeVergillo
- 28, Male
- Bedminster, NJ
- United States
- Featured Blog (1)
- Discussions (3)
- Events
- Groups (2)
- Photos
- Photo Albums
Anthony DeVergillo's Groups
Anthony DeVergillo's Discussions
MDA Camp cut off age change Petition
Started this discussion. Last reply by Beverly DeVergillo Sep 5, 2008. 3 Replies 0 Favorites
Anthony DeVergillo's Page
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- Anthony
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City:
- Bedminster
- State:
- New Jersey
Anthony DeVergillo's Blog
Awakening From The Dream
Posted on March 14, 2015 at 10:30am 2 Comments 0 Favorites
I close my eyes and the Dream begins…
In my Dream it is morning and I am lying in bed under the covers. I look at the clock and realize that I overslept and am going to be late for school! But there is no nurse there to help. So I try to lift up my hand and for the first time in over a decade it moves and I yank the covers off of me. Now what? I…
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Hi Anthony,
My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.
Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.
Please let me know if we can contact you at your convenience.
Thank you for your time and cooperation in this effort.
Sincerely,
Ron
Thank you for the friend request!
StaffPat Furlong said…
Hey Anthony, I love the photo and your website is amazing. I'll look forward to seeing you next week.
Pat
Anthony,
Cool!!! Your web site Anthonysabilities is fantastic. You go man!
You also look pretty hot in a tux. ;-)
I bookmarked your site so I can read every single entry. I was on the verge of trying somethng new in life, and you just helped give me the nudge. Thanks. I am reading up on Buddhism, so I was especially pleased to see your video and quotes from the Dalai Lama. I think Buddhism can help all of us struggling with Duchenne.
Keep it coming Anthony,
Andrea in Montreal
my son Martin, 10, also have Duchenne. I hope he also will develop a “never give up” attitude in his life! Kathleen is right, guys like you are an inspiration for our kids.
Ciao from Italy
Sabrina
Great job, I am so pround to call you a friend. You are an inspiration to Christian as well as other boys.
Keep up the good work.
Kathleen