Ann Lucas
  • Female
  • Charlotte, NC
  • United States
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Ann Lucas's Page

Profile Information

About me:
I am a certified genetic counselor and a DuchenneConnect Coordinator. I have previously worked in a neuromuscular clinic and have over 15 years of clinical experience in medical genetics and research.
About my family:
I am married and have two daughters.

Ann Lucas's Blog

Understanding Clinical Trials in Duchenne

Posted on August 7, 2017 at 2:00pm 0 Comments

Hope is critical to survival. Hope helps us get through those times of darkness with the thought that there is something new on the horizon, a potential new destination. Hope enables us to focus on meeting challenges even in the midst of adversity. Hope allows us to see that there might be another path to achieve our goal and it allows us to look for…


DuchenneConnect Expands Down Under!

Posted on June 5, 2017 at 9:30am 0 Comments

Last year advocates from Save Our Sons Duchenne Foundation (SOS) approached PPMD about partnering to have a patient report registry in Australia. They were worried because at the time there were no clinical trials in Australia. This needed to change.

They knew…


New Research & Clinical Trial Tools on PPMD's DuchenneConnect!

Posted on January 12, 2017 at 1:24pm 0 Comments

We are excited to announce three new features now available on PPMD's DuchenneConnect! These tools are meant to help you in your journey as you gather information around potential research studies and potential new exon skipping therapies.  …


DuchenneConnect Twitter Chat on Thursday, October 20 at 1PM EST

Posted on October 17, 2016 at 11:30am 0 Comments

Join us for our first DuchenneConnect Twitter chat on Thursday, Oct 20, 2016 from 1-2:00 PM EST. We will be using the hashtag #DuchenneConnectTC.

Our first chat will cover the importance of PPMD's patient registry,…


Comment Wall (2 comments)

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At 8:03pm on March 1, 2016, Shelly said…
Hi Ann
Thanks a lot for sending me the details. I have made my mind to participate in BMS ANTIMYOSTATIN trial for my son. What do you say about it. Please suggest whether I am on a right track or not...
Thanks and regards
At 9:57am on October 9, 2015, Tabitha Roth said…
Hi Ann, I'm so sorry that I sent the comment wrong. I would greatly appreciate you sending it to Margie. It must have been ment for me to speak to you. If you have any information about the Achilles Heel Lengthening procedure, I would love to here it. Thank you for your help!

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