Posted on August 7, 2017 at 2:00pm 0 Comments 0 Favorites
Hope is critical to survival. Hope helps us get through those times of darkness with the thought that there is something new on the horizon, a potential new destination. Hope enables us to focus on meeting challenges even in the midst of adversity. Hope allows us to see that there might be another path to achieve our goal and it allows us to look for…
ContinuePosted on June 5, 2017 at 9:30am 0 Comments 0 Favorites
Last year advocates from Save Our Sons Duchenne Foundation (SOS) approached PPMD about partnering to have a patient report registry in Australia. They were worried because at the time there were no clinical trials in Australia. This needed to change.
They knew…
ContinuePosted on January 12, 2017 at 1:24pm 0 Comments 0 Favorites
We are excited to announce three new features now available on PPMD's DuchenneConnect! These tools are meant to help you in your journey as you gather information around potential research studies and potential new exon skipping therapies. …
ContinuePosted on October 17, 2016 at 11:30am 0 Comments 0 Favorites
Join us for our first DuchenneConnect Twitter chat on Thursday, Oct 20, 2016 from 1-2:00 PM EST. We will be using the hashtag #DuchenneConnectTC.
Our first chat will cover the importance of PPMD's patient registry,…
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Thanks a lot for sending me the details. I have made my mind to participate in BMS ANTIMYOSTATIN trial for my son. What do you say about it. Please suggest whether I am on a right track or not...
Thanks and regards
Shelly