Hi Alice,

My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.

 

Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.

 

Please let me know if we can contact you at your convenience.

 

Thank you for your time and cooperation in this effort.

 

Sincerely,

 

Ron

Hello, from Cheryl here in Presque Isle, Maine

Do, your boys see Dr. Rio? He used to come do our clinic years ago when Adam was younger.

Do, you know Sarah, Pauline and the rest at the MDA Office there in Westbrook?

Adam and I are doing the Shamrock Patrol thing!

Do, you know a Kathy White.....I used to work under her when she used to live up this way....she was my superviser at Visiting Nurses, she lives there in Biddeford on Loop Road?

Maybe we may get a chance to meet, Adam and I may make it to some of the MDA Events planned in the lower part of Maine...if we can afford to travel when they take place.

My regular e-mail address is: cmarkey1961@yahoo.com if you would perfer to correspond with me outside of PPMD.

God Bless!
Cheryl