My son Henry, 5 years old, was diagnosed in December. He thought the bloodwork that we had done would help the doctors fix him so he could play soccer and swim...his words. ( I didn't know why we were getting bloodwork done at all...Ignorance is bliss?)   He knows we have been going to the doctor to "help his muscles."  He has splints and does stretching at night.  Beyond that, I will ask him if…