This group will meet for about a week to help the DuchenneConnect team understand in more detail the side effects and benefits that families and their children have with Corticosteroid therapy. This will help us direct a a comprehensive survey tool that will be used to study these issues in our com…
Connect with other 2018 PPMD Annual Conference attendees.
Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in denial. Just to chat about the life of being a step mum.
Hi, My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped. Thanks, Amrit
Pledge to donate $1 per pound of weight lost to PPMD Research. Let's motivate each other to lose weight and be healthier and raise money for PPMD at the same time.
For those who have lost a child.
Connect with other families with exon deletion 3-7.
Connect with other 2019 PPMD Annual Conference attendees.
This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.
God Bless you. Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within Qatar Thanks and best regards Vinu.
I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?
Support group for families in Latin America with family members with Duchenne. This is a bilingual group English and Espanol. Bienvenidos al grupo de familias que hablan Espanol y tienen familiares o ellos mismos tienen Duchenne.
To join the all DMD families together
I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with form this group.Thanks,and stay strong for our boys.
Patients living with DMD & Autism Spectrum Disorder.
Anyone who has a Splice Site Mutation.
Only 1.9% in the cases of exon deletion; Only 1.9% opportunity for receiving treatment; Let's join hands for our sons' future !