Perlita & Gordy Hains's Groups (9)

  • Outliers - Intermediate between Duchenne & Becker MD

    48 members Latest Activity: Dec 10, 2018 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

  • Diet to lower CPK

    14 members Latest Activity: Aug 22, 2014 Presentation of attempts to lower CPK levels by change in diet or supplements.

  • DMD RECIPE IDEAS

    66 members Latest Activity: Feb 16, 2017

  • PTC 124-2b Clinical Trial

    31 members Latest Activity: May 1, 2018 Various issues re: PTC 124 Clinical Trials for current or prospective participants worldwide

  • Premature Stop Codon

    76 members Latest Activity: Jul 5, 2016

  • Mom's Cafe

    125 members Latest Activity: Oct 23, 2017 A group for Mom's who like to vent and talk about life with DMD kids

  • Families in Pennsylvania

    45 members Latest Activity: Feb 20, 2015 Group where families in the Pennsylvania or sorrounding area can colloborate

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