Henry Linter's Groups (59)

  • Deletion of exon 51

    19 members Latest Activity: Jan 24, 2016 For the parents of boys with a deletion of exon 51.

  • Exon skipping 53

    19 members Latest Activity: Jun 16, 2018

    Hi,

    My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.

    Thanks,

    Amrit

  • Military Families with DMD

    13 members Latest Activity: May 10, 2016

  • Memorial Wall

    12 members Latest Activity: Jan 19, 2016 Remembering our B/DMD Boys who looses the battle with Muscular dystrophy. As family and friends, we advocate and battle this disease...but the…

  • PTC124 Phase 2a Extension Study Families

    24 members Latest Activity: Jan 19, 2016 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…

  • Outliers - Intermediate between Duchenne & Becker MD

    49 members Latest Activity: Jun 24, 2020 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

  • Qatar DMD group

    4 members Latest Activity: Apr 6, 2016

    God Bless you.

    Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…

  • Adolescence (age 7-12)

    120 members Latest Activity: Oct 13

  • NOVA parents

    4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?

  • Florida Families

    41 members Latest Activity: Dec 12, 2017 Families from Florida that are affected by DMD/BMD

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2021   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service