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19 members Latest Activity: Jun 16, 2018 Hi, My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped. Thanks, Amrit
Hi,
My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.
Thanks,
Amrit
13 members Latest Activity: May 13, 2016 discussion about what we have to do
124 members Latest Activity: Oct 8, 2020 A group for Mom's who like to vent and talk about life with DMD kids
10 members Latest Activity: Aug 20, 2013 For older men affected with DMD, and people living with older guys, its not just the parents living with DMD. This is a place for us older guys…
For older men affected with DMD, and people living with older guys, its not just the parents living with DMD. This is a place for us older guys…
76 members Latest Activity: Jul 5, 2016
115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.
66 members Latest Activity: Jun 24, 2020
44 members Latest Activity: Feb 18, 2015 Discussion group for families in New York on fundraising events, care, advocacy.
Discussion group for families in New York on fundraising events, care, advocacy.
193 members Latest Activity: Sep 17, 2015 For families who take their children to Cincinnati Children's Hospital for DMD/BMD medical care.
For families who take their children to Cincinnati Children's Hospital for DMD/BMD medical care.
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