Featured Groups

All Groups (130)

  • 2018 PPMD Annual Conference

    6 members Latest Activity: Jun 13, 2018

    Connect with other 2018 PPMD Annual Conference attendees.

  • Step Mum's to kids with B/DMD

    4 members Latest Activity: Feb 1, 2018 Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in…

  • Advisory Committee Group

    30 members Latest Activity: Oct 16, 2019

  • Exon skipping 53

    19 members Latest Activity: Jun 16, 2018

    Hi,

    My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.

    Thanks,

    Amrit

  • Exon Deletion 52

    13 members Latest Activity: Dec 1, 2021

  • Lose to Cure MD

    14 members Latest Activity: Dec 16, 2012 Pledge to donate $1 per pound of weight lost to PPMD Research. Let's motivate each other to lose weight and be healthier and raise money for PPMD at…

  • Bereaved Parents

    18 members Latest Activity: May 3, 2020 For those who have lost a child.

  • Exon Deletion 3-7

    29 members Latest Activity: Nov 2, 2018 Connect with other families with exon deletion 3-7.

  • 2019 PPMD Annual Conference

    2 members Latest Activity: Apr 22, 2019

    Connect with other 2019 PPMD Annual Conference attendees.

  • Gapko Survey Development

    4 members Latest Activity: Aug 4, 2015

    This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.

  • Qatar DMD group

    4 members Latest Activity: Apr 6, 2016

    God Bless you.

    Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…

  • NOVA parents

    4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?

  • United Arab Emirates Femilies

    2 members Latest Activity: Oct 8, 2012

    To join the all DMD families together

  • MD In Kenya

    2 members Latest Activity: Jan 18, 2016 I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with…

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